Two months of ups and downs...

We had SO many appointments with SO many specialists in March and April, it was just CRAZY! It was good the girls were in school then. It's a whole different story now that it's summertime...

Things are going well for Kaitlyn and Sydney. They love our little 3ft pool in the backyard and all the sun God is finally providing us with after such a LONG winter. Makenzie is pretty much maintaining where she has been for a while. She is still take a drop of baby food about every min. She did take about 1/2 oz of baby food at feeding therapy a few weeks ago. She did well in PT today with a sub Physical therapist. She really worked her on the exercise ball today, gave me a few ideas to do at home to get her muscles working and rolling over.

We did however have a visit to the Developmental Clinic attached to Spectrum Health in mid-April. The appt seemed to be going to well for the first 2 hours until they asked us if we had any questions. We asked if she would ever walk one day.... they're response was.. I don't think so. Would she ever talk... I don't think so. That was a VERY hard day. We kept our distance from alot of people for a while and that's why I haven't posted in a while. The news was just too hard to handle for a while. Ken and I are coming to acceptance with the facts and trying to keep the emotions on low. It's very hard to be on the emotional roller coaster for so long. We are just going to keep doing what we're doing everyday and wait until she's between 2-3 years old to see where she's at. They say we will have a better idea at that age.

Makenzie is 9 months old and still being fed by G-tube. She doesn't sit up on her own and is still having issues with head control. We're working on rolling over, sitting up and standing (on occasion). I work with her everyday with various therapies. My day is full with three kids, meals, workbooks and all the demands at ages 6, 3.5 and 9 months. Ken is being very supportive with everything and is a good sounding board when I need it. He is still holding strong at Herman Miller with every other Friday off.

We are planning a vacation here in a few weeks to Traverse city and Ludington. It will be nice to get away from the house for a while. I hope Makenzie does ok.

I will try to have pictures next time. Posting kind of late, but I promised by the end of June and I only have a few hours left.

Until next time...